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About PSP Australia Photo

PSP Australia is a group of people with personal experience of living with PSP. Group members understand the importance of having clear, accurate information about the condition. We began in April 2002 as a support group for people with PSP and their families and carers.

Our mission is to promote PSP among the public and health professionals and to reassure people with PSP and their carers that they are not alone and that help is available.

Our objectives include:

  • To raise awareness and understanding of PSP in Australia.
  • To help identify and work to address issues facing carers of people with PSP.
  • Encourage PSP research, including in the development of appropriate intervention and health care and in identifying key patterns and demographics.
  • To provide up-to-date information and educational resources for people with PSP, their families, carers and professionals.

We receive no recurrent government funding and rely on donations, bequests and fundraising. PSP Australia is supported by Parkinson’s Victoria, which provides financial and legal auspice. Donate to PSP Australia.

We are grateful to the Paul Newman FoundationExternal site link for their support with a grant of US US$8,000 (AU$10,600). The foundation’s philosophy is to donate all profits from world-wide sales to smaller, lesser known organisations which may not have access to government or corporate funding, yet still provide essential community support.

PSP Australia Support Group

The PSP Australia Support Groups meet bi-monthly in two locations:  Cheltenham on the first Thursday of every second month and Mornington on the second Friday of every second month. Our meetings comprise informal information sharing and socialisation as well as presentations by professionals. For information about upcoming meetings or to subscribe to the regular newsletter, contact Parkinson’s Victoria on (03) 9581 8700.  See news and events for 2015 meeting dates and further information about the activities of this and other PSP support groups.


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