Welcome !
Welcome to PSP Australia. This website provides information for anyone affected by Progressive Supranuclear Palsy (PSP for short), including people diagnosed, their family members, friends and carers, as well as health professionals.
PSP is a rare neurological condition affecting the parts of the brain that control walking, eye movements, balance, speech and swallowing. Symptoms can be managed with a range of therapies and treatments, but symptoms become progressively worse over time. There are currently around 1300 Australians diagnosed with PSP, although many others may have the condition but are wrongly diagnosed with a similar condition.
PSP Australia is a group of people with personal experience of living with this condition. We understand that having clear, accurate information can really help to make the most of living with PSP.
PSP information and support is available by contacting Parkinson's Victoria on 1800 644 189 or (03) 8809 0400.
COVID 19 and PSP
The Coronavirus COVID 19 is an unprecedented health care challenge and the news surrounding it can be overwhelming and confusing.
A person living with PSP, MSA or CBS has no increased risk of contracting COVID-19. However, this disease has been shown to pose a greater risk of severity to those aged over 60 years with an underlying health condition.
For this reason, we recommend you follow the current Government advice on sensible precautions around hygiene, social distancing, and travel restrictions.
The global pandemic has also changed the way we access health care, you may now be seeing you doctor via telehealth and some therapy program have stopped temporarily.
If you need help or support with any concern you have with any aspect of living with PSP, MSA or CBS or concerns about Coronavirus and changes to the health care system don’t hesitate to contact Parkinson’s Victoria on 1800 644 189 or 03 8809 0400 if you are interstate
Peer Support Meetings
The Bimonthly in person Atypical Peer Support Group meetings have currently been suspended and replaced by an online meeting delivered by Zoom. If you are interested in attending an Online meeting please send us an email. [email protected]
